We can help you achieve victories over Marfan syndrome and related disorders by offering meaningful ways you can make a difference. You can help us raise awareness; learn more about these conditions and then share what you know! Help us advance research by making a donation or by advocating with legislators to support funding for research. You can also get involved by becoming a part of our community give and get support. Click on the links below to learn more about how you can get involved.
Ways to Give
Your contribution today allows us to continue to pursue innovative, life-saving research, educate the public and patient community, and provide personalized support to individuals and families.
You can make a difference for the Marfan syndrome and related disorders community! Find out how you can join us in our fight for victory!
Walk for Victory
One way to volunteer is through our national walk program. Learn how you can walk for victory and help the Marfan syndrome and related disorders community.
Participate in a Study
Doctors and scientists who conduct research on Marfan syndrome and related disorders frequently need to involve people living with these conditions. Find out how you can help advance research by enrolling in a study.
Connect with Community
There's a warm and welcoming community to help you live successfully with Marfan syndrome or a related disorder. Learn how you can connect with people online and in your own backyard.