December 2025

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

08 Dec

Virtual

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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.

09 Dec

6:00 pm - 7:00 pm

Virtual

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Support for Parents/Guardians of Children with Early-Onset (Neonatal) Marfan Syndrome

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.

09 Dec

8:00 pm

Virtual

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(Rescheduled) VEDS Parents (under 18)

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.

10 Dec

8:00 pm

Virtual

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LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]

11 Dec

7:00 pm - 8:00 pm

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San Francisco Marfan Meetup

Connect with others with connective tissue conditions! Let’s get lunch at Gotts Roadside at Chase Center in San Francisco. Vegetarian, vegan, and gluten-free options available. Feel free to bring friends and loved ones. Please RSVP on Partiful or by emailing isaacbrodsky@live.com. Please feel free to spread the word!

13 Dec

12:00 pm - 2:00 pm

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hands on a laptop with a stethoscope next to it

Newly Diagnosed & Those Seeking Diagnosis

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.

15 Dec

5:00 pm - 6:00 pm

Virtual

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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.

15 Dec

7:30 pm - 9:00 pm

Zoom

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Kids Club

16 Dec

7:00 pm - 9:00 pm

Virtual

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Support for Parents/Guardians of Children w/Marfan, LDS, related conditions

Are you are a parent or guardian of a child with Marfan syndrome, Loeys-Dietz syndrome or a related connective tissue condition? Is your child 18 years old and younger? If so, we invite you to join other parents to discuss the challenges of raising a child with one of these conditions. This group meets on […]

17 Dec

7:00 pm - 8:00 pm

Zoom

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Conexiones: Estamos juntos (impartido en español)

17 Dec

7:30 pm

Virtual

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Marfan Connect (50+) Support

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you.

19 Dec

3:00 pm

Virtual

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Calendar

December 2025