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June 2026

Walk For Victory – Pacific Northwest (Seattle)

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
06 Jun
11:00 am - 2:00 pm
Seward Park
5900 Lake Washington Blvd S, Seattle, WA 98118
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Walk For Victory – Milwaukee

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
07 Jun
11:00 am - 2:00 pm
Greenfield Park, Shelter 5
2028 S 124th St, West Allis, WI 53227
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HeartWorks NYC 2026

On June 9, 2026, the Marfan Foundation welcomes guests to Cipriani 42nd Street for Heartworks NYC 2026, an extraordinary evening celebrating 45 years of The Marfan Foundation’s impact, progress, and hope. This year’s gala, with returning Dinner Chairs Karen Murray and Sinclair Li, honors the Foundation’s legacy of advancing research, improving patient care, and supporting individuals and families affected by Marfan […]
09 Jun
All Day
Cipriani 42nd Street
110 E 42nd St, New York, NY 10017
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
09 Jun
6:00 pm - 7:00 pm
Virtual
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LDS Connect

Please Note: Due to our scheduling conflicts with our Conference in Atlanta, this group will meet on Thursday July 3, 2025 at 7pm EST. (instead of Thursday July 10, 2025) If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about […]
11 Jun
7:00 pm - 8:00 pm
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Walk For Victory – Boston

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
14 Jun
11:00 am - 2:00 pm
Christopher Columbus Park
100 Atlantic Avenue, Boston MA 022110
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2026 Global Virtual Conference

The Marfan Foundation’s 2026 Global Virtual Conference brings together a global community of individuals living with Marfan syndrome, Loeys-Dietz syndrome (LDS), Vascular Ehlers-Danlos syndrome (VEDS), Stickler syndrome, and related conditions, as well as their families, healthcare professionals, and researchers. Over four days, participants will explore the many dimensions of life with these conditions through sessions on medical […]
15 - 18 Jun
12:15 pm - 4:15 pm
Zoom
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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
15 Jun
7:30 pm - 9:00 pm
Zoom
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Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
16 Jun
7:00 pm - 9:00 pm
Virtual
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