“A Better Perspective and Stronger Determination”: Justice Adrienne W. Albrecht’s Life with a “Marfan Body”
Adrienne W. Albrecht says she learned to read with her nose “practically touching the...
Know the Signs, Fight for Victory
Adrienne W. Albrecht says she learned to read with her nose “practically touching the...
When Bella Sera was growing up in Houston, Texas, she was tired of other kids calling her...
Guest blogger Coley Jackson, 21, of Raleigh, NC is a current student at James Madison University....
A Los-Angeles-based jewelry designer and member of the Marfan community has created a specially...
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...