Knowledge is power. And we want to make it as easy as possible for you to access information from our world renowned Professional Advisory Board and other leading medical experts on Marfan and related conditions. Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts. We hope this knowledge will empower you to advocate for yourself or your family members with your doctors, schools, employers, and more.
Each webinar is one hour. It will feature a Powerpoint presentation, followed by ample time to ask questions. You can access it on your desktop, laptop, smartphone, tablet, or other device so you can watch the presentation. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings will be available on this website following the presentation.
For quality of life webinars that empower you to live better with your diagnosis, please click here.
For our COVID webinars, and other information for about covid for our community, please click here.
Have a question?
We can help.
Contact our Help & Resource Center by submitting a question via the link below.
Upcoming Webinars
Previous Webinars
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Advances in the Treatment of Aortic Dissection – May 2021
Dr. Marc Moon and Dr. Westley Ohman, Washington University School of Medicine
*This webinar is a presentation from the GenTAC Alliance, a division of The Marfan Foundation -
Aortic Imaging: Your Questions Answered – April 2021
Dr. Venkat Polsani, Piedmont Heart -
Adult Cardiology Issues: Your Questions Answered – March 2021
Dr. Jay Shah, Mayo Clinic – Arizona -
Surgery Series: Aortic Arch Surgery – February 2021
Dr. Anthony Caffarelli, Hoag Hospital -
Surgery Series: Open Thoracoabdominal Repair – February 2021
Dr. Joseph Coselli, Baylor College of Medicine
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Surgery Series: Aortic Root Surgery – February 2021
Dr. Eric Roselli, Cleveland Clinic
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Surgery Series: Mitral Valve Surgery – February 2021
Dr. Duke Cameron and Dr. Amy Spooner, Massachusetts General Hospital.
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Lens Surgery: Your Questions Answered – January 2021
Dr. Rachel Kuchtey, Vanderbilt Eye Clinic
2020 Webinars
Headaches and Migraines: Your Questions Answered – October 2020
Dr. Addie Peretz, Stanford Healthcare
Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions – May 2020
Dr. Rachel Kuchtey, Vanderbilt Eye Clinic
Pregnancy and Marfan Syndrome – April 2020
Dr. Melissa Russo, Brown University
Dental Concerns in Marfan Syndrome and Related Conditions – January 2020
Dr. Sylvia Frazier-Bowers, University of North Carolina-Chapel Hill
2019 Webinars
Management of Dissections and Aneurysms in VEDS – December 2019
Sherene Shalhub, MD, University of Washington
Lung Issues in Marfan Syndrome – September 2019
Dr. Enid Neptune, Johns Hopkins School of Medicine
Aging Issues in Marfan and Related Conditions – May 2019
Dr. Juan Bowen, Mayo Clinic
Children’s Heart Issues in Marfan, Loeys Dietz, and Vascular Ehlers Danlos Syndromes – April 2019
Dr. Ron Lacro, Boston Children’s Hospital
Vascular Ehlers Danlos: An Overview – March 2019
Dr. Sherene Shalhub, University of Washington
Dr. Shaine Morris, Texas Children’s Hospital
Keeping Your Spine, Limbs, and Feet Healthy In Marfan Syndrome and Related Conditions – January 2019
Dr. Paul Sponseller, Johns Hopkins
Dr. Adam Bitterman, Northwell Health
2018 Webinars
Loeys Dietz Syndrome: An Overview – November 2018
Dr. Hal Dietz, Johns Hopkins University School of Medicine
Marfan 101 – September 2018
Dr. Luciana Young, Seattle Children’s Hospital
Taking Care of Your Aorta – October 2018
Dr. Alan Braverman, Barnes-Jewish Hospital, Washington University School of Medicine, St. Louis
Have a question? We can help.
Contact our Help \& Resource Center: 800-8-MARFAN or submit a question via the link below.