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Find Study Participants

We help researchers studying Marfan syndrome or related conditions find study participants.

We inform our community about studies that are open for enrollment. We describe the study rationale and objectives, explain some of the eligibility criteria and what participation may involve, and provide contact information for additional information or assistance with enrollment.

To facilitate enrollment, we educate our community about the benefits of being part of a study, what to expect, and things they should know before making a decision.

Depending on the study or need, we may be able to provide researchers with other types of assistance. To obtain more information or discuss your study, please email to research@marfan.org.