Every year, we hold an Annual Conference which provides people living with Marfan syndrome and related disorders, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey. Physicians can benefit from attending the conference in several ways. First, it offers the opportunity for physicians to participate in a health fair where they can observe mutliple evaluations in a single day. Secondly, it allows for networking with the most prestigious experts in the field and families faced with difficult medical journeys at numerous social events.
The health fair is conducted for people who do not have access to experts in the field for varying reasons and may be in need of a differential diagnosis or management advice. It is an opportunity to consult on evaluations with geneticists, cardiologists, surgeons, orthopedists and numerous other specialities as needed. The health fair ends with a clinical review of challenging health fair cases or challenging cases from other clinical sites. This provides first-hand experience with a multitude of people with these conditions. It is an excellent training experience for young physicians.
Our Annual Conference is held every summer at varying locations. Our 35th Annual Conference, in association with Texas Children's Hospital is scheduled for July 11-14, 2019, in Houston, TX.