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Annual Conference


Every year, we hold an annual conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.

We offer specialized programs and workshops for people of every age, including children, teens, young adults, and older people. In addition, we offer conference attendees free medical assessments, which we make possible in conjunction with the medical institution that co-hosts the meet with us and our dedicated medical advisors, who are the leading doctors on Marfan syndrome and related disorders from across the U.S. This is a unique offering that is truly a benefit for those who do not have access to expert medical care near their home or lack healthcare coverage. And, we offer scholarships for first-time conference attendees.

2021 ANNUAL CONFERENCE UPDATE: The Northwestern, Lurie, and Marfan teams have decided to postpone the in-person Annual Conference in Chicago in July of 2021. Our hotel partners agree with this decision and look forward to welcoming the Foundation back to Chicago in the future. As always, the intent of our collective decision is to put the health, safety, and well-being of our community first, out of an abundance of caution and lack of certainty for what the coming months will bring with respect to the current public health crisis. In the next several months, we will work on a plan to bring our community together this summer.

OPPORTUNITY FOR DOCTORS: Dr. Reed Pyeritz and Ms. Jane Tumpson Marfan Conference Physician Travel Scholarship available. Learn more and apply here.

Save the Date!

36th Annual Conference

July 7-10, 2022

Newport Beach, CA