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We always have the latest and most accurate information on Marfan syndrome and related disorders for patients and families, medical professionals, and the general public.

Our Resources

  • Contact our Help Center at 800-8-MARFAN ext. 126 or at
  • Use our fact sheets to gain more knowledge about different aspects of Marfan syndrome and related disorders.
  • Browse our multimedia archive to find more information on topics such as social issues, medical issues, the latest research and how you can get involved.
  • Watch our video series to see some of the most commonly asked questions about Marfan syndrome, answered by real people whose lives have been affected by it.