Prepare for Victory: Virtual Medical Symposium Series

Knowledge is power. And we want to make it as easy as possible for you to access information from our world renowned Professional Advisory Board and other leading medical experts on Marfan and related conditions. Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts. We hope this knowledge will empower you to advocate for yourself or your family members with your doctors, schools, employers, and more.

Each webinar is one hour. It will feature a Powerpoint presentation, followed by ample time to ask questions. You can access it on your desktop, laptop, smartphone, tablet, or other device so you can watch the presentation. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings will be available on this website following the presentation.

Upcoming Webinars:
Lung Issues in Marfan Syndrome
Tuesday, September 24, 7 pm Eastern
Enid Neptune, MD
Johns Hopkins School of Medicine
Management of Dissections and Aneurysms in vEDS
Sherene Shalhub, MD, University of Washington
December 9, 2019, 7 pm Eastern Time
Dental Concerns in Marfan Syndrome and Related Conditions
Thursday, January 16, 2020, 7 pm Eastern
Sylvia Frazier-Bowers, DDS, PhD
University of North Carolina-Chapel Hill
Previous Webinars:
Aging Issues in Marfan and Related Conditions
Dr. Juan Bowen, Mayo Clinic
Children’s Heart Issues in Marfan, Loeys Dietz, and Vascular Ehlers Danlos Syndromes
Dr. Ron Lacro, Boston Children’s Hospital
Vascular Ehlers Danlos: An Overview
Sherene Shalhub, MD, University of Washington
Shaine Morris, MD, Texas Children’s Hospital
Keeping Your Spine, Limbs, and Feet Healthy In Marfan Syndrome and Related Conditions
Chief of Pediatric Orthopedics, Professor of Orthopedic Surgery at Johns Hopkins
Orthopedic Surgeon, Foot and Ankle Specialist at Northwell Health
Loeys Dietz Syndrome: An Overview
Hal Dietz, MD
Smilow Center for Marfan Syndrome Research
Johns Hopkins University School of Medicine
Marfan 101
Dr. Luciana Young
Seattle Children’s Hospital
University of Washington School of Medicine, Seattle


Taking Care of Your Aorta
Dr. Alan Braverman
Barnes-Jewish Hospital
Washington University School of Medicine, St. Louis

If you have questions about this webinar series or if you would like to suggest future topics, please email