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Prepare for Victory: Virtual Medical Symposium Series

Knowledge is power. And we want to make it as easy as possible for you to access information from our world renowned Professional Advisory Board and other leading medical experts on Marfan and related conditions. Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts. We hope this knowledge will empower you to advocate for yourself or your family members with your doctors, schools, employers, and more.

Each webinar is one hour. It will feature a Powerpoint presentation, followed by ample time to ask questions. You can access it on your desktop, laptop, smartphone, tablet, or other device so you can watch the presentation. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings will be available on this website following the presentation.

For quality of life webinars that empower you to live better with your diagnosis, please click here.

For our covid webinars, and other information for about covid for our community, please click here.

Upcoming Webinars: 

Advances in the Treatment of Aortic Dissection
Dr. Puja Kachroo and Dr. Westley Ohman, Washington University School of Medicine
May 12, 7 pm Eastern
*This webinar is a presentation from the GenTAC Alliance, a division of The Marfan Foundation
 
 
 
 

Previous Webinars:

Aortic Imaging: Your Questions Answered - April 2021
Dr. Venkat Polsani, Piedmont Heart
 
 
Adult Cardiology Issues: Your Questions Answered - March 2021
Dr. Jay Shah, Mayo Clinic - Arizona
 
 
Surgery Series: Aortic Arch Surgery - February 2021
Dr. Anthony Caffarelli, Hoag Hospital
 
 
Surgery Series: Open Thoracoabdominal Repair - February 2021

Dr. Joseph Coselli, Baylor College of Medicine

VIEW WEBINAR HERE

Surgery Series: Aortic Root Surgery - February 2021

Dr. Eric Roselli, Cleveland Clinic

 

Surgery Series: Mitral Valve Surgery - February 2021

Dr. Duke Cameron and Dr. Amy Spooner, Massachusetts General Hospital.

VIEW WEBINAR HERE

 
Lens Surgery: Your Questions Answered - January 2021
Dr. Rachel Kuchtey, Vanderbilt Eye Clinic
 
Headaches and Migraines: Your Questions Answered - October 2020
Dr. Addie Peretz, Stanford Healthcare
 
Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions - May 2020
Dr. Rachel Kuchtey, Vanderbilt Eye Clinic
 
 
Pregnancy and Marfan Syndrome - April 2020
Dr. Melissa Russo, Brown University
 
Dental Concerns in Marfan Syndrome and Related Conditions - January 2020
Dr. Sylvia Frazier-Bowers, University of North Carolina-Chapel Hill
 
Management of Dissections and Aneurysms in VEDS - December 2019
Sherene Shalhub, MD, University of Washington
 
Lung Issues in Marfan Syndrome - September 2019
Dr. Enid Neptune, Johns Hopkins School of Medicine
 
 
 
Aging Issues in Marfan and Related Conditions - May 2019
Dr. Juan Bowen, Mayo Clinic
 
 
 
Children’s Heart Issues in Marfan, Loeys Dietz, and Vascular Ehlers Danlos Syndromes - April 2019
Dr. Ron Lacro, Boston Children’s Hospital
 
 
 
Vascular Ehlers Danlos: An Overview - March 2019
Dr. Sherene Shalhub, University of Washington
Dr. Shaine Morris, Texas Children’s Hospital
 
 
 
 
Keeping Your Spine, Limbs, and Feet Healthy In Marfan Syndrome and Related Conditions - January 2019
Dr. Paul Sponseller, Johns Hopkins
Dr. Adam Bitterman, Northwell Health
 
 
 
 
Loeys Dietz Syndrome: An Overview - November 2018
Dr. Hal Dietz, Johns Hopkins University School of Medicine
 
 
Marfan 101 - September 2018
Dr. Luciana Young, Seattle Children’s Hospital
 
 

VIEW POWERPOINT HERE

Taking Care of Your Aorta - October 2018
Dr. Alan Braverman, Barnes-Jewish Hospital, Washington University School of Medicine, St. Louis
 

If you have questions about this webinar series or if you would like to suggest future topics, please email publicity@marfan.org.