Phone Support Groups

Join a phone support group today! Phone support groups are a great way to connect with others in the Marfan syndrome and related condittions community. Groups meet once a month for six months. Phone support group calls are toll-free.

Sign Up Today!

To sign up for one or more of these phone support groups email, supportservices1@marfan.org

Include your name, email address, and which group(s) you want to sign up for in the body of the email.

Note: All times are Eastern Standard Time

Newly Diagnosed

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? If you would like to connect with others who are just starting out on this medical journey, this group is for you. This group meets on the 3rd Thursday of every month at 5:00 PM EST.

Pain Management

This support group is for people with Marfan syndrome or a related conditionswho are interested in exploring various ways to deal with pain.  This group meets on the 4th Thursday of every month at 5:00 PM EST.

50+ Support

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you. This group meets on the 3rd Friday of every month at 3:00 PM EST.

Marfan Connection

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you. This group meets on the 1st Thursday of every month at 5:00 PM EST.

Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group. This group meets on the 2nd Thursday of every month at 5:00 PM EST.