Virtual Support Groups

Join a phone support group today! Virtual support groups are a great way to connect with others in the Marfan syndrome and related condittions community. Groups meet once a month for six months. Virtual support group calls are free.

Sign Up Today!

Newly Diagnosed & Those Seeking Diagnosis

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you. This group meets on the 3rd Thursday of every month at 5:00 PM EST.

Register Here

Pain Management

This support group is for people with Marfan syndrome or a related conditions who are interested in exploring various ways to deal with pain.  This group meets on the 4th Thursday of every month at 5:00 PM EST.

Register Here

50+ Support

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you. This group meets on the 3rd Friday of every month at 3:00 PM EST.

Register Here

Marfan Connection

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you. This group meets on the 1st Thursday of every month at 5:00 PM EST.

Register Here

Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group. This group meets on the 2nd Thursday of every month at 5:00 PM EST.

Register Here