Marfan Syndrome and Related Conditions Empowerment Series | The Marfan Foundation

Marfan Syndrome and Related Conditions Empowerment Series

The Marfan Syndrome and Related Conditions Empowerment Series is a new webinar program launched in January 2018 to help people in our community improve their quality of life. The topics that will be covered in this series are selected based on the needs expressed by our members. These include: pain, depression, insurance problems, inability to work, financial instability, chronic bone / joint / eye problems, and a whole host of problems that lie outside the specific medical issues that are associated with Marfan syndrome.
 
Please register in advance for any of the webinars you would like to participate in. A recording of each will be available on our website for those who are unable to participate live.
 
Relationships and Chronic Illness
Roanne Weisman, MSW, and Barbara Kivowitz
January 22, 7 pm Eastern
 
The Role of Genetic Counselors in Your Medical Journey
Taylor Beecroft, MS, CGC
Texas Children’s Hospital
March 14, 8 pm Eastern
 
Tips for Coping with Depression, Anxiety, and Anger
Melissa Flint, PsyD
Midwestern University
May 22, 8 pm Eastern
 

Previous Webinars

On Grief and Grieving
Presented by Susan Leshen, LCSW and Jan Lynch, MSN, RN of The Marfan Foundation
 
Managing Pain
Presented by Traci Speed, MD, PhD
 
How To Work with Your School Nurse
Presented by Kathleen Rose, RN
 
Empowerment and Finding Your Passion 
Presented by Andy Erikson and Katie Lasky
 
The Other Half Of You: Mental Health For Beginners
Presented by Stephanie Randazzo, PsyD, Doctoral Student at AUSFBA
 
Let's Talk About YOU: Self-Care and Empowerment Strategies
Presented by Jan Lynch, MSN, RN, Director of the Foundation’s Help & Resource Center
 
Social Security Disability 
Presented by Kathleen Kane, Esq, and Jon Rodis, President of the Massachusetts Chapter of The Marfan Foundation and a National Disability and Medical Advocate for Rare Disorders
 
Physical Therapy
Presented by Michael P. Healy, PT, DPT, DOMTP, (Canada), CSN, CPT, TPI, MBA, President and CEO, Healy Physical Therapy & Sports Medicine
If you have any questions or if you’d like to suggest a topic for a future webinar, please email programs@marfan.org.
 

The Marfan Syndrome and Related Disorders Empowerment Series is supported by an educational grant from the

Chu and Chan Foundation.