Raising awareness is vital for several reasons, most urgently because people who have Marfan syndrome but do not know it may not get the medical care they need—especially in life-threatening situations like an aortic dissection. The more people who know about Marfan syndrome and related disorders, both in the medical community and the general public, the more likely people who have it will receive a proper diagnosis, and proper medical care.
The most powerful way we can raise awareness is through you—our volunteers. You are the best messengers. You have the reach, the knowledge, and the commitment to helping people with Marfan syndrome and related disorders.
If you are looking for a way to help raise awareness of Marfan syndrome in your community, an Awareness Table is a great way to do it. This guide walks you through the steps to set up your own Awareness Table and tells you how we can help.
Looking for other ways to raise awareness and fundraise? Click here.