This guide provides step-by-step guidelines for raising awareness of Marfan syndrome and related disorders in conjunction with an upcoming local production of the hit Broadway show, RENT. Jonathan Larson, the creator of this award winning musical, died suddenly of a misdiagnosed aortic dissection believed to have been caused by Marfan syndrome. His tragic story can increase awareness of this life-threatening genetic disorder and save others from the same fate.
This guide contains suggested activities, sample letters, a press release, and educational materials you can reproduce and share with others and describes three ways you can take part in a RENT Awareness & Fundraising Project:
- Pre-performance publicity
- Performance day awareness activity
- Coordinated fundraising activity