The documentary film, In My Hands: A Story of Marfan Syndrome, was released in 2009 to wide acclaim, winning awards and bringing Marfan syndrome to the attention of new audiences. The movie tells the inspirational story of several children and adults affected by Marfan syndrome and the challenges they face. It features the Tony Award-winning dancer and choreographer Ann Reinking, whose son Chris has Marfan syndrome.
At just 56-minutes long, In My Hands is an ideal vehicle for our volunteers to use to provide support to local Marfan communities and raise awareness of Marfan syndrome beyond these communities. This guide outlines three projects you can implement using In My Hands as the centerpiece.
Looking for other ways to raise awareness and fundraise? Click here.