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Mentor Team

The Marfan Foundation’s mentor program gives individuals of any age an opportunity to connect with another person who has faced the same situation they have on their journey with Marfan syndrome or a related conditions – whether they are affected directly or a family member of an affected person. It gives people in our community an opportunity to ask questions and network with other people, regardless of their location. It is a great opportunity for people learn and get support from others in the community.

If you want to connect with other people in the community who are new to their diagnosis or going through challenges that you have already faced, join this team as a mentor. We’ll provide with training and guidance so you are comfortable in your mentor role. Please fill out the forms at either of the links below to participate.


If you have any questions, please email volunteer@marfan.org.