The Marfan Foundation’s mentor program gives individuals of any age an opportunity to connect with another person who has faced the same situation they have on their journey with Marfan syndrome or a related conditions – whether they are affected directly or a family member of an affected person. It gives people in our community an opportunity to ask questions and network with other people, regardless of their location. It is a great opportunity for people learn and get support from others in the community.
If you want to connect with other people in the community who are new to their diagnosis or going through challenges that you have already faced, join this team as a mentor. We’ll provide with training and guidance so you are comfortable in your mentor role. To get started, complete this form. Matches are made based on the information provided.
If you have any questions, please contact Susan Leshen, LCS, Senior Director of Patient & Program Services and Volunteer Leadership, at firstname.lastname@example.org.