Community Action Team

Local events are a great way to raise awareness and raise critical funds for The Marfan Foundation. Activities can be done by an individual, a family, or a group of friends. They can include health fairs, bake sales, garage sales, penny drives, and presentations to local medical school students. We’ll share ideas with you and arrange for meetings where team members can share ideas with each other, discuss successes, and help each other plan for the future. We can help you tap into others in the Marfan and related conditions community to get involved. You can also encourage your friends, family members, co-workers, and neighbors to make your event a success. Want to join the team? Send your name, phone number, city, and state to volunteer@marfan.org

Fundraising Projects

Awareness Projects