Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions.

There are many ways to become a volunteer. There’s something for everyone – from one-time projects to ongoing campaigns, community events to set up or outreach from the comfort of your own home. Regardless of your age or location, there are many ways for you to get involved.


Fundraising Projects

Make a difference by helping to raise money for the Foundation’s programs and services. Find an opportunity that fits in your schedule.


Awareness Projects

Help raise awareness of Marfan and related conditions. Learn about online and community-based opportunities.


Legislative Advocacy

Your voice matters! Share your story and contact your local elected officials to let them know the issues that are important to the Marfan and related conditions community.


Event Volunteer

Want to help out at our events? Find out what is happening in your area and how you can help.


Mentor Opportunities

Your experience can help others who are on the same medical journey. Learn how you can mentor someone else in our community.