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Volunteers For Victory

Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions.

There are many ways to become a Volunteer for Victory. There’s something for everyone – from one-time projects to ongoing campaigns, community events to set up or outreach from the comfort of your own home. Regardless of your age or location, there are many ways for you to get involved. Not sure which volunteer is right for your? Please email Susan Sobers at ssobers@marfan.org to arrange a one-on-one consultation.


Social Media Awareness Team

Got followers? Use your socail media influence and get the inside track on announcements and new graphics from the Foundation.


Writing Group

Share your story! Utilize your writing talent to help us create content for all sorts of Foundation communication platforms, like our blog, newsletter, and more.


Legislative Ambassadors

Your voice matters! Share your story and contact your local elected officials to let them know the issues that are important to the Marfan and related conditions community.


Mentor Team

Your experience can help others who are on the same medical journey. Learn how you can mentor someone else in our community.


School Nurse Champions

School nurses are our first line of defense. Join our national effort to raise awareness of Marfan and related conditions in schools across the country.


Community Action Team

 Local events are a great way to raise awareness and raise critical funds for The Marfan Foundation. Get involved by organizing an event in your area.


Event Volunteers

Want to help out at our events? Find out what is happening in your area and how you can help.