Volunteer | The Marfan Foundation


Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions.

There are many ways to become a volunteer. There’s something for everyone – from one-time projects to ongoing campaigns, community events to set up or outreach from the comfort of your own home. Regardless of your age or location, there are many ways for you to get involved.

Raise Awareness

Interested in organizing an event to raise awareness about Marfan syndrome? We can help find the right event for you and assist you with the details.


Your voice matters! Join forces with us to let national and local elected officials know about the issues that are important to the Marfan syndrome and related disorders community.