Know the Signs, Fight for Victory

#MarfanRealReels

#marfanrealreels represent individuals’ opinions and experiences with Marfan syndrome. They are shared to build awareness regarding the condition and the many varying ways in which it impacts those who experience Marfan. As always, seek your healthcare provider’s advice regarding your medical situation and safety, including physical activity.

Social Media Swag

English
  • Facebook Downloads

  • Instagram Downloads

  • Social Media Story Downloads

Spanish
  • Facebook Downloads

  • Instagram Downloads

  • Social Media Story Downloads

Marfan Fact Graphics

English
  • Facebook Downloads

  • Instagram Downloads

  • Social Media Story Downloads

  • Know the Signs

    Know the signs, save lives! An infographic listing the signs of Marfan syndrome featuring a torso with arms outstretched.

    Know the signs, save lives! An infographic listing the signs of Marfan syndrome featuring a torso with arms outstretched.

  • Know the signs, save lives! An infographic listing the signs of Marfan syndrome featuring a torso with arms outstretched.
  • Know the signs, save lives! An infographic listing the signs of Marfan syndrome featuring a torso with arms outstretched.
Spanish
  • Facebook Downloads

  • Instagram Downloads

  • Social Media Story Downloads

  • Know the Signs

    ¡Conozca las señales, salve vidas! Una infografía que enumera los signos del síndrome de Marfan y muestra un torso con los brazos extendidos.

  • ¡Conozca las señales, salve vidas! Una infografía que enumera los signos del síndrome de Marfan y muestra un torso con los brazos extendidos.

Looking for Marfan Awareness Month facts in more languages?

We’ve got you covered! Click the button below for a page that can be translated into over 25 different languages.

Simply choose your preferred language in the dropdown menu and you can copy, paste, and share these life-saving facts all year round.

Social Media Tips & Sample Posts

  • Instagram

    1. If you have an Instagram account, make sure you “follow” The Marfan Foundation account at @TheMarfanFoundation so that our posts appear in your feed.
    2. Comment, repost, and share our posts, pictures, and videos, especially during Marfan Awareness Month.
    3. Create your own Instagram posts to educate your personal networks about Marfan syndrome. Use our hashtag #MarfanAwareness in all your posts for easy tracking. Tell your story, explain why Marfan awareness is important to you, and promote Marfan facts. Encourage your Instagram followers to share your posts to expand your impact.
    4. Post photos and share what you’re doing for Marfan Awareness Month on your Instagram account tagging @TheMarfanFoundation and using the hashtag #MarfanAwareness.

     

  • Sample Instagram Captions

    • Note: If you include a photo of yourself or a family member, you can gain more responses! You can also use the downloadable images above.
    • It’s Marfan Awareness Month! An estimated 200,000 people in the U.S. have Marfan or a related condition. About half don’t know it. Do you know the signs? #MarfanAwareness
    • Do you know about Marfan? February is Marfan Awareness Month. Learn the basic facts. #MarfanAwareness
    • February is Marfan Awareness Month! Learn what it is! #MarfanAwareness
    • People with #Marfan syndrome can live a normal lifespan IF they are diagnosed and treated. It’s Marfan Awareness Month, so please learn the signs! #MarfanAwareness
    • Do you know what Marfan syndrome looks like? The outward signs could indicate a life-threatening problem that you can’t see. Find out more, including how to get evaluated, during February, which is Marfan Awareness Month. Marfan.org has all the info! #MarfanAwareness

  • Facebook

    1. If you have a Facebook profile, make sure you “like” The Marfan Foundation page at https://www.facebook.com/TheMarfanFoundation so that our posts appear in your news feed.
    2. Comment and share our posts, pictures, and videos, especially during Marfan Awareness Month.
    3. Create your own Facebook posts with links to Marfan.org to educate your personal networks about Marfan syndrome. Use our hashtag #MarfanAwareness in all your posts for easy tracking. Tell your story, explain why Marfan awareness is important to you, and promote Marfan facts. Encourage your Facebook friends to share your posts to multiply your impact.
    4. Post photos and share what you’re doing for Marfan Awareness Month on our Facebook page.
  • Sample Facebook Captions

    Note: If you include a photo of yourself or a family member, you can gain more responses! You can also use the downloadable images above.

    • It’s Marfan Awareness Month! An estimated 200,000 people in the U.S. have Marfan or a related condition. About half don’t know it. Do you know the signs? #MarfanAwareness http://bit.ly/MarfanSigns
    • Do you know about Marfan? February is Marfan Awareness Month. Learn the basic facts. #MarfanAwareness https://bit.ly/Marfan_Facts
    • February is Marfan Awareness Month! Learn what it is! #MarfanAwareness http://bit.ly/WhatIsMarfan
    • People with #Marfan syndrome can live a normal lifespan IF they are diagnosed and treated. It’s Marfan Awareness Month, so please learn the signs! #MarfanAwareness http://bit.ly/MarfanSigns
    • Do you know what Marfan syndrome looks like? The outward signs could indicate a life-threatening problem that you can’t see. Find out more, including how to get evaluated, during Marfan Awareness Month in February at Marfan.org. It has all the info! #MarfanAwareness

  • Twitter

    1. If you have a Twitter handle, make sure you follow us @MarfanFdn.
    2. Watch for our tweets, like them, and retweet them to your followers.
    3. Create your own tweets about Marfan syndrome to educate your followers. Use our hashtag #MarfanAwareness in all your tweets for easy tracking. Tell your story, explain why Marfan awareness is important to you, and promote Marfan facts. Encourage your followers to retweet your tweets to multiply your impact.
  • Sample Tweets

    • February is Marfan Awareness Month! Learn about Marfan at Marfan.org. #MarfanAwareness
    • Marfan Awareness is very important to me. Please visit Marfan.org to learn more. #MarfanAwareness
    • I’m supporting Marfan Awareness because #Marfan is in my family. Find out what it is at Marfan.org. #MarfanAwareness
    • There is beauty in #Marfan syndrome. Hear the late Tony Award-winner Ann Reinking talk about it. #MarfanAwareness http://bit.ly/MarfanReinking1
    • It’s Marfan Awareness Month! Check out the faces of #Marfan syndrome. #MarfanAwareness http://bit.ly/MarfanFaces
    • #MarfanAwareness is a good time to learn the signs of #Marfan. Check them out here – http://bit.ly/MarfanSigns.
    • Approx. 200,000 in the U.S. have #Marfan, but half don’t know it. Know the signs! #MarfanAwareness http://bit.ly/MarfanSigns

Public Proclamations

Support awareness and action in your community with these easy how-to guides.

If you’ve received a proclamation, send a picture to brandcomms@marfan.org so we can share it with our community!

Questions? Contact brandcomms@marfan.org