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Special Events

We hold many events from coast-to-coast throughout the year to raise awareness of Marfan syndrome and related conditions, and to raise critical funds to support our work. From a cocktail party set-up by one of our dedicated volunteers, to our formal Heartworks Gala, to a walk with Walk for Victory, each and every event is important and helps us further our mission.
Additionally, here are several events held each year that provide support and education to the Marfan community. Our annual four-day national family conference and various regional symposia allow patients, their families, and medical experts to come together and connect in ways that literally save lives.
Heartworks St. Louis Gala 

A wonderful time was had by all who attended the virtual St. Louis Heartworks gala. Dr. Alan and Rebecca Braverman hosted the event, now in its 12th year, with over 200 attendees watching from the safety of their homes. Donations are still being accepted here. And mark your calendar now for March 19, 2022, when we hope to celebrate in person at The Four Seasons St. Louis.

(Un)Corked Chocolate Edition - April 29, 2021

Napa Valley and Stags Leap Wine Cellars is Calling! You won’t want to miss this unique wine and chocolate tasting event! Enjoy the highly acclaimed Artemis Cabernet and Karia Chardonnay, paired with award winning chocolates from artisan chocolatier, Kollar Chocolates. Click here for ticket information and more.

Join (Un)Corked Culinary Edition and cook alongside a chef from Eataly. We will make an early summer risotto and enjoy wine chosen by Eataly's sommelier. Enjoy by yourself, or share with others! Our VIP reception, at 7:30 pm ET, features our very own Celebrity Chef, Dr. Hal Dietz, and Gretchen MacCarrick, MS, who will amaze you with their culinary skill. For more information and to participate, please click here.
 Virtual Heartworks New York City Gala - June 24, 2021

Join us from the safety and comfort of your home for the 20th anniversary of The Marfan Foundation’s largest fundraising event, the HeartWorks Gala. The evening will be a celebration of the legacy of our beloved Annie Reinking, and the amazing contributions of our three honorees.

Since its inception in 2000, HeartWorks has raised over $15 million. Karen Murray, former Chairman of the Board of Directors, is our Founder and Host. Sinclair Li, of CBRE, is our Dinner Host, and Gil Bashe, of Finn Partners, chairs our Champion Committee.

This year we honor  James Black III, MD, of Johns Hopkins, Firas Mussa, MD, of Northwell Health, and Barbara Lerman, CPA.  Click here for tickets and more information.

Join us on Saturday, June 26, as we celebrate the inaugural Houston HeartWorks Gala, the Mask-erade Ball! The black tie optional event will take place at The Four Seasons Houston and feature live music by Ezra Charles, also known as The King of Texas-Style Piano. Event honorees include our Hero with Heart, Aven McBride, President, American Communications Construction, and Medical Honoree, Dr. Joseph S. Coselli, Baylor College of Medicine. Click here for more information and to purchase tickets.

Annual Conference - July 8-11, 2021
Every year, we hold an Annual Family Conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey. This year, the Annual Conference will be virtual (online). Registration is coming soon.
50th Annual NYC MarathonNovember 7, 2021
It's official! On November 7, 2021, 33,000 people will run the 50th Annual NYC Marathon, and we are excited to announce that The Marfan Foundation will have a team once again! Please contact Alyssa Aiello at aaiello@marfan.org with any questions. Please note, it is not recommended that people with Marfan and related conditions should not participate in competitive or contact sports.