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Special Events

We hold many events from coast-to-coast throughout the year to raise awareness of Marfan syndrome and related conditions, and to raise critical funds to support our work. From a cocktail party set-up by one of our dedicated volunteers, to our formal Heartworks Gala, to a walk with Walk for Victory, each and every event is important and helps us further our mission.
Additionally, here are several events held each year that provide support and education to the Marfan community. Our annual four-day national family conference and various regional symposia allow patients, their families, and medical experts to come together and connect in ways that literally save lives.
 
At Evening with Heart-Mix It Up Virtually we learned how to mix 3 perfect cocktails with our Cocktail Connoisseur, as well as some interesting history behind each beverage. Chaired by David & Heather Earnhart. What a fun night! We learned, we laughed, and we raised funds for our favorite non-profit. Donations are still being accepted at www.marfan.org/donateup.
 
Announcing our 1st Evening with Heart South Florida at The Balqony at The Hilton Fort Lauderdale Beach Resort! Join us for a night filled with light bites, cocktails, a spectacular silent auction, and some surprises! Chaired by Bert Medina and Steve Crombe. Click here for tickets and more information.
 
Evening with Heart Boston - April 22, 2021
It’s our 2nd Annual Evening with Heart Boston! Please join our committee at the Union Club for a very special night to benefit The Marfan Foundation. Chaired by Rob Goldman. Click here for tickets and more information.
 
 
 
Heartworks St. Louis Gala - March 13, 2021
Hosted by Dr. Alan and Rebecca Braverman, Heartworks St. Louis is a fun-filled celebration of the progress in the diagnosis and treatment of genetic aortic conditions. This black tie event, now in its 12th year, brings together the medical and patient community and honors outstanding contributions to our medical and science arena. Click here for tickets and more information.
 
 
Heartworks New York City Gala - May 19, 2021
Join us for the 20th anniversary of The Marfan Foundation’s largest fundraising event. Since its inception in 2000, HeartWorks has raised over $15 million. Karen Murray, former Chairman of the Board of Directors, serves as Corporate Host. Sinclair Li, of CBRE, is our Dinner Host, and Gil Bashe, of Finn Partners, chairs our Champion Committee. This year’s honorees are James Black III, MD, of Johns Hopkins, David Liang, MD, PhD, of Stanford and Hoag Heart and Vascular Institute, and Barbara Lerman, CPA.  Click here for tickets and more information.
 
Please join us for a fun evening of dancing, delectable food, delicious cocktails, and a dazzling silent auction. This event will be held at Hope & Main in Warren, RI. You will dance like it’s 1999! Chaired by Melissa Russo, MD.  
 
 
Annual Conference - TBD
Every year, we hold an Annual Family Conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.