Know the Signs, Fight for Victory

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August 2025

The Northern Illinois Chapter Potluck Picnic

Please join the Northern Illinois Chapter of the Marfan Foundation for a potluck picnic and fun outdoor activities for the whole family! On GPS, enter 26401 Grande Park Blvd (IP Code 60585), the clubhouse/pool to the east of the park. Enter the large parking lot marked with the Community Park sign and go to the […]
23 Aug
11:30 am - 2:30 pm
Community Park Pavilion
26401 Grande Park Blvd, Plainfield, IL 60585
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San Francisco Lunch Get-Together

Connect with others with connective tissue conditions! Lunch: Gotts Roadside at the Ferry Building in SF. Vegetarian, vegan, and gluten-free options are available. The restaurant is at the north end of the ferry building, facing downtown San Francisco. Feel free to bring friends and loved ones. Please RSVP on Partiful or by emailing isaacbrodsky@live.com. Please […]
23 Aug
12:00 pm - 2:00 pm
Gott's Roadside Ferry Building
1 Ferry Bldg Marketplace, San Francisco, CA 94111
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LDS Connect International

Please Note: Due to Memorial Day (US) this group will meet on Tuesday May 27, 2025 at 2pm EST. (Instead of Monday May 26, 2025) The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended […]
25 Aug
2:00 pm - 3:30 pm
Zoom
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VEDS Parents

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.
27 Aug
8:00 pm
Virtual
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Pain Management

Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
28 Aug
7:00 pm
Virtual
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September 2025

Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
01 Sep
7:30 pm
Zoom
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Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
04 Sep
5:00 pm
Virtual
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Stickler Connect

You are warmly invited to join our support group for individuals diagnosed with Stickler syndrome. This group offers a welcoming space to connect with others who understand your experiences and share valuable resources and information. Join us every first Wednesday of the month at 8:00 PM Eastern Time to share stories, find support, and build […]
06 Sep
8:00 pm - 9:00 pm
Zoom
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