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May 2026

Memorable Moments Luncheon

The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant programs that make a difference in the community. Led by Co-Chairs Alix Jennings & Barbara Lerman, the luncheon will highlight three key programs: Camp Victory, The Marfan Foundation Annual Conference, and The Sydney Lerman Hospitality Program. This luncheon aims to bring […]
03 May
11:30 am - 2:00 pm
Avra (NYC)
14 E 60th St, New York, NY 10022
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Teen Game Night

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in the fun. We will be playing games using the Jackbox game series.
04 May
7:30 pm
Zoom
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Empowered Pain Relief Course

The Marfan Foundation is pleased to offer Empowered Relief®️, a free 2.5-hour pain management course to our community members experiencing chronic pain. Instructor Kyle Davis, PhD, will lead this evidence-based program developed at Stanford University, focusing on reducing pain intensity and enhancing overall well-being through pain education, mindfulness, and self-regulatory skills like relaxation and cognitive […]
06 May
6:00 pm - 8:30 pm
Zoom
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Stickler Connect

You are warmly invited to join our support group for individuals diagnosed with Stickler syndrome. This group offers a welcoming space to connect with others who understand your experiences and share valuable resources and information. Join us every first Wednesday of the month at 8:00 PM Eastern Time to share stories, find support, and build […]
06 May
8:00 pm - 9:00 pm
Zoom
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Marfan Connect

Are you diagnosed with Marfan syndrome or a related disorder? Are you between 30 and 50 years old? Would you like to connect with others living with Marfan syndrome and related disorders for support and to share resources and information? If so, this group is for you.
07 May
5:00 pm
Virtual
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Walk For Victory – Denver

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
09 May
9:30 am - 12:30 pm
Great Lawn Park
101 Yosemite St, Denver, Lowry, CO 80230
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Walk For Victory – New York

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
09 May
10:00 am - 1:00 pm
Cathedral of The Incarnation
50 Cathedral Ave, Garden City, NY 11530
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Walk For Victory – Washington, DC

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that improve the lives of our community: […]
09 May
11:00 am - 2:00 pm
Meadowbrook Local Park
7901 Meadowbrook Ln, Chevy Chase, MD 20815
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
12 May
6:00 pm - 7:00 pm
Virtual
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