Our annual family conference offers opportunities for people of all ages to learn about Marfan syndrome and related disorders from experts in the field, network with others on the same medical journey, and make life-long friends.
Our full-day regional educational symposiums bring our conference experience to different regions of the country with medical presentations and opportunities to connect with others in the Marfan and related disorders community.
The mentor program ensures that anyone who wants to connect with someone and ask questions has a way to do this, regardless of their location. It is a great opportunity for people learn and get support from others in the community.
Our local groups around the country get together to share experiences, talk about local resources, and have fun. Some of them also do projects to advance our mission. Find out if there's a group in your area!
Our local groups hold events of all types - social, educational, awareness, fundraising. Find out what's happening in your area!
Our online community allows you to connect with people in the Marfan syndrome and related disorders community from the comfort of your home. You can meet people, chat with people who have the same interests, post questions, and more.