In light of the current public health crisis due to COVID-19, The Marfan Foundation is providing regular updates for the Marfan, VEDS, Loeys-Dietz, and related condition community. Our Professional Advisory Board has collaborated with us to bring you the best medical information on COVID-19 in relation to our community. We are complementing this with guidance to help you cope with the added stress and anxiety that this situation is causing.
As always, the Centers for Disease Control and Prevention (CDC) is a great resource for general information on COVID-19. We recommend reviewing the CDC’s steps to prevent illness and their statement for people at risk for serious illness from COVID-19, which includes those with chronic disease.
If you have additional medical questions, please submit them to our Help & Resource Center through our website.
UPCOMING WEBINAR: The Latest Research on Covid Related to Aortic Disease on January 14, 7 pm Eastern. Featured speakers are Dr. Kim Eagle, University of Michigan, Dr. Enid Neptune, Johns Hopkins, and Dr. Josephine Grima, The Marfan Foundation. Register here.
QUALITY OF LIFE INFORMATION
|GOING BACK TO SCHOOL DURING CORONAVIRUS PANDEMIC|
|Webinar: Conversation about Coping|
|COPING WITH COVID SUPPORT GROUP|
RESOURCES IN SPANISH
|Declaración de asesoría profesional - 13 de marzo||Declaración de asesoría profesional - 16 de marzo|
|Declaración del Presidente y CEO de la Fundación - 17 de marzo||Declaración del Presidente y CEO de la Fundación - 13 de marzo|