COVID-19 UPDATES FOR OUR COMMUNITY

In light of the current public health crisis due to COVID-19, The Marfan Foundation is providing regular updates for the Marfan, VEDS, Loeys-Dietz, and related condition community. Our Professional Advisory Board has collaborated with us to bring you the best medical information on COVID-19 in relation to our community. We are complementing this with guidance to help you cope with the added stress and anxiety that this situation is causing.

As always, the Centers for Disease Control and Prevention (CDC) is a great resource for general information on COVID-19. We recommend reviewing the CDC’s steps to prevent illness and their statement for people at risk for serious illness from COVID-19, which includes those with chronic disease.

If you have additional medical questions, please submit them to our Help & Resource Center through our website.

MEDICAL INFORMATION

 
Resuming Medical Care - May 4
Professional Advisory Statement - March 16
Webinar: COVID-19 - Your Questions Answered
Webinar: COVID-19 and the Marfan and Related Conditions Community
COVID-19 Myths Busted
HIGH RISK PATIENTS AND VENTILATORS

QUALITY OF LIFE INFORMATION

 
Webinar: Conversation about Coping

FOUNDATION NEWS

Recording of Foundation Town Hall – April 14

Statement from the Foundation’s President and CEO – March 13

Statement from the Foundation’s President and CEO - March 17

Statement from the Foundation’s President and CEO - March 25

Events Update

RESOURCES IN SPANISH

 
Declaración de asesoría profesional - 13 de marzoDeclaración de asesoría profesional - 16 de marzo
Declaración del Presidente y CEO de la Fundación - 17 de marzoDeclaración del Presidente y CEO de la Fundación - 13 de marzo