The Marfan Foundation is requesting proposals for clinical research studies focusing outside of the cardiovascular arena. Proposals can be retrospective or prospective and may utilize data obtained through registries/databases, observational studies, and surveys. Proposals should conduct scientiﬁcally rigorous research that produces valid new knowledge with clinical and quality of life endpoints in the absence of randomized clinical trials. Proposals may focus on patient-oriented research, including epidemiologic, behavioral, quality of life studies and outcomes research
Grants will be reviewed by a special review committee with clinical and quality of life expertise, including Jonathan Weinsaft, MD, Weill Cornell Medicine, Chair, and Craig Basson, MD, PhD, Novartis Institute for Biomedical Research.
Special areas of interest include ophthalmology, orthopedics, pulmonology, gastroenterology, allergy and immunology, autism, ADHD, ADD, physical therapy/exercise, pain and fatigue, mental and emotional health, behavioral studies and/or nutrition studies.
Grants can range from $25,000–$50,000 per year for one or two years.
Application date: April 1, 2019
Award Announcement: June 24, 2019
Funds Available: January 1, 2020