The Marfan Blog

“I still have so much to live for”: healing after Marfan-related aortic surgeries

Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...

Awareness September 20, 2025September 20, 2025

Advocacy, Awareness, Community, Diagnosis, Español, Healthcare Management, Know the Signs September 17, 2025September 24, 2025

Mi Historia con el Síndrome de Marfan y la Disección Aórtica

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

From Survivor to Advocate and a Roar for Aortic Awareness

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

August 27, 2025August 27, 2025

Nuestro camino con el Síndrome Marfan

Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...

Community, Quality of Life July 29, 2025July 29, 2025

Community Member, Physical Therapist

Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...

Mental Health, Quality of Life May 21, 2025May 21, 2025

“An emotional jamboree…” One parent’s perspective on Marfan syndrome

Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory