We always work tirelessly to advance research that saves lives and dramatically enhances the quality of life for people living with Marfan syndrome and related conditions. The research that we’ve supported has helped reduce life-threatening problems from these conditions, identified treatments that have improved the quality of life, and helped people to live a long life with Marfan syndrome and related conditions. We continue to support this research because we know there are still people struggling on their medical journey.
In addition, the research we’ve championed has identified new disorders related to Marfan syndrome, which not only allows for better, more specific diagnoses, but also helps to pinpoint more effective treatments for Marfan syndrome and the related conditions.
To expand the impact of our efforts, we push the government to fund the research that will improve and save lives. Further, we facilitate the sharing of knowledge about Marfan syndrome and related conditions through conferences, symposia, and partnerships with governmental agencies and other health organizations. We continue to move forward research for both Marfan syndrome and related conditions because advances in fighting Marfan syndrome helps us take steps toward victory in related conditions—and vice versa.
Each year, The Marfan Foundation pursues the most innovative research by providing support through our research grant program. Through our grant program and other commitments, we funded $1.4 million in research in the past year.
In 2020, we received 44 proposals (nearly double from the previous year) and awarded seven research grants to scientists ranging from seasoned investigators to young researchers. Four of the new grants were awarded to first time applicants, helping to expand our circle of researchers. We provided a grant to an international researcher as well. Through our grant program and other commitments, we funded $1.4 million dollars in research this year. As a result of our efforts in 2020, grants will help researchers investigate studies in the areas of:
- Cardiovascular mechanisms for Marfan and related conditions
- Neonatal Marfan syndrome
- Structural function in VEDS
- Orthopedics in Marfan
In addition to the newly awarded research grants, the Foundation provided another $725,000 in 2020 research support for the Aortic Valve Sparing Operative Outcomes Study and the Marfan and Related Conditions International Patient Registry with Backpack Health, as well as funding for an additional 20 researchers who were awarded multi-year grants in the past two years.
To read more about the research grants we most recently awarded, click here.