President & CEO
Michael Weamer (x150)
mweamer@marfan.org
COO/CFO
Judy Gibaldi (x114)
jgibaldi@marfan.org
Chief Science Officer
Josephine Grima, PhD (x117)
jgrima@marfan.org
Chief Development Officer
Helaine Baruch (x141)
hbaruch@marfan.org
Chief Program Officer
Eileen Masciale (x161)
emasciale@marfan.org
Senior Director of Patient & Program Services
Susan Leshen, LCSW (x122)
sleshen@marfan.org
Director of Finance & HR
Inderjeet Kaur (x121)
ikaur@marfan.org
Director of Help & Resource Center
Janice Petrella Lynch, MSN, RN (x126)
jlynch@marfan.org
Director of National Philanthropy
Megan Martin (x160)
mmartin@marfan.org
Senior Vice President, Development
Deborah Goodman (x154)
dgoodman@marfan.org
Senior Vice President, Walk for Victory Program
Kimberly Huddleston (x132)
Director of Volunteer Engagement
Suśan Sobers (x116)
Director of Technology Solutions
Kelly Kopish (x164)
Director of vEDS (Vascular Ehlers-Danlos Syndrome) Division
Katie Wright (x165)
Marketing and PR Manager
Angela Crist (x162)
Walk for Victory Manager
Kara Burke
Data Entry and
Administrative Manager
Julie Perlin (x120)
Social Events Manager
Alyssa Aiello (x111)
Accountant
Lesley Harris (x140)
Program Manager
Bruno DaSilva (x143)
Accounting & Administrative Clerk
Joann Saccone (x125)
Data Entry Clerk
Margaret Helstowski (x144)
Operations Assistant
Jasmine Llanos (x123)
Development Assistant
Kristin Braun