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June 22, 2016

The Marfan Foundation will hold its 32nd Annual Conference in Rochester, MN, on August 4-7. The conference, organized in collaboration with Mayo Clinic, will bring more than 600 people with Marfan syndrome and related disorders to the Med City.

June 2, 2016

The Marfan Foundation’s sound fiscal management practices and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator.

May 3, 2016

The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its writers and producers, for incorporating “Marfan syndrome” into the script of the May 1 episode as an insult to one of the characters of the program.

April 15, 2016

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 16th Heartworks gala in New York City.

March 29, 2016

Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two dozen singers who appeared in various productions of the award-winning show, RENT, in a tribute to playwright Jonathan Larson as he is posthumously awa

March 3, 2016

Earlier this week, Maryland Congressman Chris Van Hollen and Congressman Mike Fitzpatrick (R-PA) were joined by 24 House colleagues in urging the U.S.

February 4, 2016

The Marfan Foundation is honoring the Weill Cornell Medicine Cardiac Team – Drs. Richard Devereux, Leonard Girardi, and Mary Roman – with a Hero with a Heart Award at its Heartworks gala on April 14.

January 22, 2016

On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive Congressional Briefing.

January 8, 2016

The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid healthcare professionals in the diagnosis of Marfan syndrome and related disorders.