January 27, 2017

Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of Medicine, is the recipient of The Marfan Foundation’s 2017 Distinguished Research Award at the Foundation’s Heartworks St. Louis gala on March 4.

January 10, 2017

The Marfan Foundation is pleased to announce that Heidi Connolly, MD, is now the chair of its Professional Advisory Board.

December 5, 2016

The recording of our conference call about the physical activity guidelines for Marfan syndrome and related disorders is now available.

December 1, 2016

Last night, Isaiah Austin -- who was diagnosed with Marfan syndrome in 2014 and had to withdraw from the NBA draft -- announced that he has been "cleared" to pursue his dream of playing professional basketball.

November 13, 2016

The Marfan Foundation announced today its collaboration with the American Heart Association (AHA) on the pilot program of My Research Legacy™, a secure online network that allows people to donate their lifestyle and genetic data and participate in

October 14, 2016

The Marfan Foundation’s fact sheet about the heart and blood vessels in Marfan syndrome has been expanded to include new information for patients and families.

August 18, 2016

In recognition of the significant contributions of volunteers throughout the country, The Marfan Foundation presented several awards at the 32nd Annual Conference.

June 22, 2016

The Marfan Foundation will hold its 32nd Annual Conference in Rochester, MN, on August 4-7. The conference, organized in collaboration with Mayo Clinic, will bring more than 600 people with Marfan syndrome and related disorders to the Med City.

June 2, 2016

The Marfan Foundation’s sound fiscal management practices and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator.

May 3, 2016

The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its writers and producers, for incorporating “Marfan syndrome” into the script of the May 1 episode as an insult to one of the characters of the program.