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March 12, 2019
The conference, scheduled for July 11-14 in in Houston, will bring together individuals and families from all over the country and all over the world. The conference features special offerings for people with Marfan syndrome, vascular Ehlers Danlos syndrome (vEDS), and Loeys Dietz syndrome.
March 5, 2019
Slots are available for the most prestigious marathon in the world. If you or someone you know would like to participate (and they do not have Marfan or a related condition), please contact us immediately.
St. Louis Heartworks 2019
February 20, 2019
The Foundation will honor orthopaedic surgeon Dr. Scott Luhmann and ocular researcher Dr. Steven Bassnett at Heartworks St. Louis on March 30.
December 12, 2018
Exciting news about The Marfan Foundation and the global Aortic Disease Awareness Day, September 19.
October 31, 2018
Two Fellowship Grants, Three Faculty Grants, and Two Clinical Grants Awarded for Research on Marfan Syndrome and Related Conditions
August 15, 2018
We couldn’t have done it without you!
May 23, 2018
The Marfan Foundation announced today that it raised $1.2 million last night at its 18th HeartWorks gala in New York City. The funds will support the Foundation’s support and education programs and services for people with Marfan syndrome, a life-threatening genetic disorder, and related conditions.
May 11, 2018
Customized for our community, the app is secure, easy-to-use, portable, and translatable!
April 24, 2018
Partnership creates a new model for how patient advocacy organizations can better support their members through leveraging real-time data.
April 3, 2018
For the first time in its 37 year history, The Marfan Foundation has been selected as one of the 2018 Best Nonprofits To Work For. The announcement was made this week by The Nonprofit Times, the leading business publication for nonprofit management