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LATEST NEWS

The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division
October 2, 2019
Katelyn Wright, a highly regarded patient advocate in the vEDS community, is director of the new division.
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Working With Your School Nurse
August 19, 2019
Check out tips and resources to help you in the new school year!
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The Marfan Foundation Launches Volunteers for Victory
August 14, 2019
New program makes it easy to get involved. Learn how to join one of the new volunteer teams and make a difference.
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Recording of Conference Medical Presentations Now Available
August 1, 2019
Learn about advances in research and treatments from the medical experts on our Professional Advisory Board.
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The Marfan Foundation Welcomes Vascular Ehlers-Danlos Community to its 35th Annual Conference, Held in Association with Texas Children’s Hospital
June 26, 2019
For the first time, a track dedicated to vEDS will be offered, and nearly 75 families with vEDS are already registered.
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The Marfan Foundation Statement on Celiprolol
June 25, 2019
Statement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with vEDS.
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Dr. Tirone David, Dr. Emile Bacha, and the Kramer Family to be Honored at 2019 Heartworks
June 10, 2019
Our honorees, Dr. David, Dr. Bacha, and the Kramer family truly represent the heart of the Foundation.
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One-Year Impact of Marfan Foundaton-Backpack Health Collaboration: Making Life Easier For People With Marfan and Related Conditions
June 3, 2019
The partnership between the Foundation and Backpack Health has had a significant impact on our community in the past year. Plus, new developments in the app have added benefits to the user experience.
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The Marfan Foundation Climbs in 2019 Best Nonprofit to Work For
April 2, 2019
The Marfan Foundation is #34 in the 2019 Best Nonprofits To Work For, up 14 spots from last year.
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New Dr. Reed Pyeritz and Ms. Jane Tumpson Marfan Conference Physician Travel Scholarship Announced
March 19, 2019

The Marfan Foundation is proud to announce the newly created Dr. Reed Pyeritz and Ms.

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