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LATEST NEWS

Sydney Lerman Pediatric Hospitality Program is Launched
September 22, 2017
The new Sydney Lerman Pediatric Hospitality Program supports children with Marfan and related disorders who are hospitalized and their families.
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The Marfan Foundation Partners with American Medical ID to Empower Patients in an Emergency
August 15, 2017
New partnership includes product discounts for our community as well as a donation to the Foundation from American Medical ID for every purchase.
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The Marfan Foundation Honors Heidi M. Connolly, MD, with 2017 Antoine Marfan Award
August 1, 2017
Award to be presented on August 5 during our 33rd Annual Conference in Atlanta.
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The Marfan Foundation Earns Coveted 4-Star Rating From Charity Navigator
July 20, 2017
The Marfan Foundation’s strong financial health and commitment to accountability and transparency have again earned it a 4-star rating, the top distinction, from Charity Navigator.
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Fall Dates Announced for Regional Symposiums
June 14, 2017
Save the date for Regional Symposiums in Detroit, Birmingham (AL), and Cleveland this Fall.
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The Marfan Foundation Achieves Accreditation From BBB Wise Giving Alliance
June 14, 2017
BBB accreditation signifies that The Marfan Foundation is deserving of donor trust as they are a well-run nonprofit organization.
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The Marfan Foundation Statement on Marfan Diagnosis of NBA Prospect
June 8, 2017
The Marfan Foundation lauds the NBA for both screening players entering the draft and prohibiting players with Marfan from participating.
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Marfan and Related Disorders Community Invited to Participate in Hill Day
May 11, 2017

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to participate as we urge legislators to support responsible healthcare reform.

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The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and Services
May 11, 2017

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City.

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Introducing New Staff to Enhance Help & Resource Center and Volunteer Services
April 28, 2017

The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.

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