On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive Congressional Briefing.
The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid healthcare professionals in the diagnosis of Marfan syndrome and related disorders.
The Marfan Foundation has named Susan Leshen, LCSW, the senior director of patient and program services and volunteer leadership, a new position at the Foundation.
The Marfan Foundation has named Isaiah Austin, the former Baylor University basketball star, National Walk Ambassador for its Walk for Victory program, a new community-based program that raises awareness about Marfan syndrome and related disorders
The Marfan Foundation today announced that it has teamed up with WebThriftStore.com to launch an online “thrift store” where its supporters can sell their lightly used goods to benefit The Marfan Foundation.
Northwestern Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago are co-hosting The Marfan Foundation’s 31st Annual Family Conference on August 6-9, 2015 in Chicago.
The Marfan Foundation announced today that Isaiah Austin is the featured speaker at the Foundation’s 31stAnnual Family Conference in Chicago.
Due to sequestration (spending cuts) and flat budgets in recent years, the National Institutes of Health (NIH) have lost nearly 25 percent of their purchasing power.
The Marfan Foundation has just published new cardiac management recommendations for the heart and blood vessels in Marfan syndrome. Changes were made in light of advances in the field, including the results of the losartan vs.