LATEST NEWS

Fall Dates Announced for Regional Symposiums
June 14, 2017
Save the date for Regional Symposiums in Detroit, Birmingham (AL), and Cleveland this Fall.
Read more
The Marfan Foundation Achieves Accreditation From BBB Wise Giving Alliance
June 14, 2017
BBB accreditation signifies that The Marfan Foundation is deserving of donor trust as they are a well-run nonprofit organization.
Read more
The Marfan Foundation Statement on Marfan Diagnosis of NBA Prospect
June 8, 2017
The Marfan Foundation lauds the NBA for both screening players entering the draft and prohibiting players with Marfan from participating.
Read more
Marfan and Related Disorders Community Invited to Participate in Hill Day
May 11, 2017

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to participate as we urge legislators to support responsible healthcare reform.

Read more
The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and Services
May 11, 2017

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City.

Read more
Introducing New Staff to Enhance Help & Resource Center and Volunteer Services
April 28, 2017

The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.

Read more
The Marfan Foundation Announces Honorees for Heartworks Gala
April 13, 2017

The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.

Read more
Boston Symposium: Making Life-Changing Connections for Children and Teens
March 22, 2017

On April 8, 2017, Dr.

Read more
Legislative Action Alert: Urge Responsible Healthcare Reform
February 10, 2017

The 115th Congress and the incoming administration have made it a priority to “repeal and replace” the Patient Protection and Affordable Care Act (ACA).

Read more
The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign
January 31, 2017
Social media and grassroots events planned to raise awareness of the signs of Marfan and related disorders to increase early diagnosis and enhance quality of life of affected people.
Read more

Pages