January 22, 2016

On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive Congressional Briefing.

January 8, 2016

The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid healthcare professionals in the diagnosis of Marfan syndrome and related disorders.

December 16, 2015

The Marfan Foundation is asking its Marfan syndrome and related disorders community to ask their House Representative’s and Senator’s staff on Capitol Hill to

December 7, 2015

The Marfan Foundation has named Susan Leshen, LCSW, the senior director of patient and program services and volunteer leadership, a new position at the Foundation.

November 4, 2015

The Marfan Foundation has named Isaiah Austin, the former Baylor University basketball star, National Walk Ambassador for its Walk for Victory program, a new community-based program that raises awareness about Marfan syndrome and related disorders

August 3, 2015

The Marfan Foundation today announced that it has teamed up with to launch an online “thrift store” where its supporters can sell their lightly used goods to benefit The Marfan Foundation.

July 20, 2015

Northwestern Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago are co-hosting The Marfan Foundation’s 31st Annual Family Conference on August 6-9, 2015 in Chicago.

June 22, 2015

The Marfan Foundation announced today that Isaiah Austin is the featured speaker at the Foundation’s 31stAnnual Family Conference in Chicago.

June 2, 2015

Due to sequestration (spending cuts) and flat budgets in recent years, the National Institutes of Health (NIH) have lost nearly 25 percent of their purchasing power.

May 1, 2015

The Marfan Foundation has just published new cardiac management recommendations for the heart and blood vessels in Marfan syndrome. Changes were made in light of advances in the field, including the results of the losartan vs.