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October 2, 2019
Katelyn Wright, a highly regarded patient advocate in the vEDS community, is director of the new division.
August 19, 2019
Check out tips and resources to help you in the new school year!
August 14, 2019
New program makes it easy to get involved. Learn how to join one of the new volunteer teams and make a difference.
August 1, 2019
Learn about advances in research and treatments from the medical experts on our Professional Advisory Board.
June 26, 2019
For the first time, a track dedicated to vEDS will be offered, and nearly 75 families with vEDS are already registered.
June 25, 2019
Statement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with vEDS.
June 10, 2019
Our honorees, Dr. David, Dr. Bacha, and the Kramer family truly represent the heart of the Foundation.
June 3, 2019
The partnership between the Foundation and Backpack Health has had a significant impact on our community in the past year. Plus, new developments in the app have added benefits to the user experience.
April 2, 2019
The Marfan Foundation is #34 in the 2019 Best Nonprofits To Work For, up 14 spots from last year.
March 19, 2019

The Marfan Foundation is proud to announce the newly created Dr. Reed Pyeritz and Ms.