The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.
The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.
On April 8, 2017, Dr.
The 115th Congress and the incoming administration have made it a priority to “repeal and replace” the Patient Protection and Affordable Care Act (ACA).
Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of Medicine, is the recipient of The Marfan Foundation’s 2017 Distinguished Research Award at the Foundation’s Heartworks St. Louis gala on March 4.
The Marfan Foundation is pleased to announce that Heidi Connolly, MD, is now the chair of its Professional Advisory Board.
The recording of our conference call about the physical activity guidelines for Marfan syndrome and related disorders is now available.
Last night, Isaiah Austin -- who was diagnosed with Marfan syndrome in 2014 and had to withdraw from the NBA draft -- announced that he has been "cleared" to pursue his dream of playing professional basketball.
The Marfan Foundation announced today its collaboration with the American Heart Association (AHA) on the pilot program of My Research Legacy™, a secure online network that allows people to donate their lifestyle and genetic data and participate in