March 12, 2020
Our Professional Advisory Board provides more information about who is at increased risk for COVID-19.
March 6, 2020
Echoing guidelines from the CDC.
February 28, 2020
Maternal-Fetal Medicine Specialist D. Michael Nelson, MD, PhD, to be Honored with
2020 Hero with a Heart Award
January 14, 2020
Opportunity to be one of the 50 Founding Individuals/Families, Regardless of Where You Live
January 8, 2020
February is Marfan Awareness Month. Help raise awareness through our new campaign, #MarfanVictoryChallenge.
December 2, 2019
The VEDS Movement, a new division of The Marfan Foundation, is excited to announce the launch of its website for the VEDS community, TheVEDSMovement.org.
November 6, 2019
Our goal is to have 2,020 people in our patient registry by June 2020. Join today!
October 31, 2019
New vEDS virtual support groups start in November! Katie Wright, director of The vEDS Movement, is spearheading this valuable program.
October 15, 2019
Two Fellowship Grants, One Early Investigator Grant, Three Faculty, and Two Clinical Grants Awarded
October 2, 2019
Katelyn Wright, a highly regarded patient advocate in the vEDS community, is director of the new division.