May 11, 2018
Customized for our community, the app is secure, easy-to-use, portable, and translatable!
April 24, 2018
Partnership creates a new model for how patient advocacy organizations can better support their members through leveraging real-time data.
April 3, 2018
For the first time in its 37 year history, The Marfan Foundation has been selected as one of the 2018 Best Nonprofits To Work For. The announcement was made this week by The Nonprofit Times, the leading business publication for nonprofit management
April 2, 2018
Registration is now open for The Marfan Foundation's 34th Annual Conference in Santa Clara, CA, July 12-15, 2018/
February 20, 2018
Tony Award winner Ann Reinking, physician-scientist Dr. Reed Pyeritz, and healthcare marketing and PR professional Gil Bashe to be honored.
February 14, 2018
The Marfan Foundation will celebrate a Decade of Progress and honor Dr. Marcia Willing at the 10th Heartworks St. Louis gala.
January 29, 2018
February is Marfan Awareness Month and The Marfan Foundation urges everyone in the Marfan and related disorders community to get involved.
December 6, 2017
The Marfan Foundation has a new resource featuring physical activity guidelines for people who have Marfan syndrome and related disorders.
November 8, 2017
Hear from leading experts on Marfan syndrome and related disorders from the Cleveland Clinic.
November 1, 2017
Pain and physical limitations are the greatest obstacles to quality of life. Read about other challenges to our community.