The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to participate as we urge legislators to support responsible healthcare reform.
The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City.
The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.
The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.