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June 19, 2014

PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are co-hosting the 30th Annual Family Conference for individuals and families with Marfan syndrome and related disorders on July 10-13, 2014.

June 3, 2014

PORT WASHINGTON, NY, June 3, 2014 -- The Marfan Foundation has been awarded Charity Navigator’s 4-star rating, the highest ackno

April 22, 2014

PORT WASHINGTON, NY, April 18, 2014 -- The Marfan Foundation is thrilled to announce that it raised $1 million at its 14th Annual Heartworks Gala in New York City earlier this month.

March 26, 2014

PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition of two experts on Marfan syndrome and related disorders to its Professional Advisory Board: Dr.

January 29, 2014

It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life, when Priscilla Ciccariello, Chair Emeritus, asked me to serve as President & CEO of The Marfan Foundation.

December 4, 2013
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.
November 1, 2013

The 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach, FL, on November 9-10, 2013, and will again benefit The Marfan Foundation.

October 9, 2013

One in five people with Marfan syndrome had some form of surgery before they were diagnosed with the potentially life-threatening condition, according to a survey of 1277 people conducted by The Marfan Foundation from July 21-August 18, 2013.