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February 20, 2015

The Marfan Foundation today announced the appointment of Michael L. Weamer as its President and Chief Executive Officer. The Marfan Foundation is the only nonprofit organization in the U.S.

February 3, 2015

Isaiah Austin, the NBA hopeful out of Baylor University who was diagnosed with Marfan syndrome just prior to the NBA draft in June, is featured in The Marfan Foundation’s new pu

November 19, 2014

The Marfan Foundation now offers a comprehensive list of frequently asked questions (FAQs) with answers and a recorded webinar to help people with Marfan syndrome and their families understand the results of the Atenolol vs.

October 3, 2014

Marfan syndrome will be at center court at the TD Garden in Boston on October 29, as the Boston Celtics partner with The Marfan Foundation to hold Marfan Night to raise awareness of the potentially life-threatening condition.

July 14, 2014

The Marfan Foundation announced today that Co-Founder and CEO of Cash Money Records Ronald Williams and former Baylor University basketball standout and “NBA Draft Pick” Isaiah Austin are new spokespeople for the nonprofit, which works to create a

July 10, 2014

Global Genes honors the pioneering achievements of individuals and
corporations in the rare disease community

Isaiah Austin diagnosed with Marfan syndrome
June 22, 2014

PORT WASHINGTON, NY, June 22, 2014 -- The Marfan Foundation lauds the NBA for its thorough screening of players entering the upcoming draft and recognizing the signs of Marfan syndrome, a potentially fatal connective tissue disorder, in Baylo

June 19, 2014

PORT WASHINGTON, NY, June 19, 2014 — The Marfan Foundation and Johns Hopkins Hospital are co-hosting the 30th Annual Family Conference for individuals and families with Marfan syndrome and related disorders on July 10-13, 2014.