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April 13, 2017

The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.

February 10, 2017

The 115th Congress and the incoming administration have made it a priority to “repeal and replace” the Patient Protection and Affordable Care Act (ACA).

January 31, 2017
Social media and grassroots events planned to raise awareness of the signs of Marfan and related disorders to increase early diagnosis and enhance quality of life of affected people.
January 27, 2017

Christina Gurnett, MD, PhD, Associate Professor of Neurology, Washington University School of Medicine, is the recipient of The Marfan Foundation’s 2017 Distinguished Research Award at the Foundation’s Heartworks St. Louis gala on March 4.

January 10, 2017

The Marfan Foundation is pleased to announce that Heidi Connolly, MD, is now the chair of its Professional Advisory Board.

December 5, 2016

The recording of our conference call about the physical activity guidelines for Marfan syndrome and related disorders is now available.

December 1, 2016

Last night, Isaiah Austin -- who was diagnosed with Marfan syndrome in 2014 and had to withdraw from the NBA draft -- announced that he has been "cleared" to pursue his dream of playing professional basketball.

November 13, 2016

The Marfan Foundation announced today its collaboration with the American Heart Association (AHA) on the pilot program of My Research Legacy™, a secure online network that allows people to donate their lifestyle and genetic data and participate in

October 14, 2016

The Marfan Foundation’s fact sheet about the heart and blood vessels in Marfan syndrome has been expanded to include new information for patients and families.