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LATEST NEWS

March 12, 2021

Even though we cannot meet with our lawmakers in the nation's capital this year, we can still voice our concerns and advocate for issues that matter to the Marfan community.

March 8, 2021
Get ready to reboot your connections with our community this summer!
March 5, 2021
Grant opportunity for our 2022 Annual Conference (registration and attendance).
February 18, 2021
Our new virtual group for children, ages 9-12, can help foster friendship, decrease social isolation, and more.
January 26, 2021
Education and awareness is always important to The Marfan Foundation. Marfan Awareness Month is when we take it to the next level.
January 21, 2021
Four features on Marfan will air during Marfan Awareness Month.
January 4, 2021
More than 60 presentations on medical and quality of life issues now on YouTube.
December 22, 2020
Statement offers recommendations for people with Marfan, VEDS, Loeys-Dietz, and Related Genetic Aortic and Vascular Conditions.
December 15, 2020
It is with great sadness and a heavy heart that the Foundation mourns the loss of Annie Reinking, our dear friend and remarkable volunteer spokesperson, who passed unexpectedly over the weekend.

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