LATEST NEWS

June 26, 2019
For the first time, a track dedicated to vEDS will be offered, and nearly 75 families with vEDS are already registered.
June 25, 2019
Statement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with vEDS.
June 10, 2019
Our honorees, Dr. David, Dr. Bacha, and the Kramer family truly represent the heart of the Foundation.
June 3, 2019
The partnership between the Foundation and Backpack Health has had a significant impact on our community in the past year. Plus, new developments in the app have added benefits to the user experience.
April 2, 2019
The Marfan Foundation is #34 in the 2019 Best Nonprofits To Work For, up 14 spots from last year.
March 19, 2019

The Marfan Foundation is proud to announce the newly created Dr. Reed Pyeritz and Ms.

March 12, 2019
The conference, scheduled for July 11-14 in in Houston, will bring together individuals and families from all over the country and all over the world. The conference features special offerings for people with Marfan syndrome, vascular Ehlers Danlos syndrome (vEDS), and Loeys Dietz syndrome.
March 5, 2019
Slots are available for the most prestigious marathon in the world. If you or someone you know would like to participate (and they do not have Marfan or a related condition), please contact us immediately.
St. Louis Heartworks 2019
February 20, 2019
The Foundation will honor orthopaedic surgeon Dr. Scott Luhmann and ocular researcher Dr. Steven Bassnett at Heartworks St. Louis on March 30.
December 12, 2018
Exciting news about The Marfan Foundation and the global Aortic Disease Awareness Day, September 19.

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