LATEST NEWS

November 6, 2019
Our goal is to have 2,020 people in our patient registry by June 2020. Join today!
October 31, 2019
New vEDS virtual support groups start in November! Katie Wright, director of The vEDS Movement, is spearheading this valuable program.
October 15, 2019
Two Fellowship Grants, One Early Investigator Grant, Three Faculty, and Two Clinical Grants Awarded
October 2, 2019
Katelyn Wright, a highly regarded patient advocate in the vEDS community, is director of the new division.
August 19, 2019
Check out tips and resources to help you in the new school year!
August 14, 2019
New program makes it easy to get involved. Learn how to join one of the new volunteer teams and make a difference.
August 1, 2019
Learn about advances in research and treatments from the medical experts on our Professional Advisory Board.
June 26, 2019
For the first time, a track dedicated to vEDS will be offered, and nearly 75 families with vEDS are already registered.
June 25, 2019
Statement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with vEDS.
June 10, 2019
Our honorees, Dr. David, Dr. Bacha, and the Kramer family truly represent the heart of the Foundation.

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