fbpx | The Marfan Foundation


September 7, 2021
Clover Health president and chief technology officer brings with him tremendous expertise and personal experience with Marfan.
August 16, 2021

The Marfan Foundation is expanding its resources to make them accessible to people who speak languages other than English and Spanish.

August 4, 2021

The Marfan Foundation, which has funded 158 in research grants and initiatives since 1989, is proud to announce it has updated its research grant program to have a more significant impact on scientific advances to improve the lives of people with

June 28, 2021
También habrá oportunidades para que los hispanohablantes se reúnan informalmente en línea durante la conferencia.
June 21, 2021
Tony Award-winning actor, dancer, and choreographer who is best known as Roxie Hart in Chicago on Broadway, was a force in the Marfan syndrome community for more than twenty years.
June 7, 2021
The Foundation’s signature event, will honor two incredible doctors, an outstanding volunteer leader, and the legacy of a Tony Award-winning actor, dancer, and choreographer on June 24, when Heartworks goes virtual.
June 1, 2021

The Marfan Foundation is pleased to announce that registration is now open for our first-ever Virtual Annual Conference, July 8-11, 2021.

April 22, 2021
A variety of offerings are available for everyone in our community - from the safety of your home.
April 12, 2021

Today, Aytu BioPharma announced their intention to conduct a drug therapy trial for Vascular Ehlers-Danlos Syndome.

April 5, 2021
The Marfan Foundation moves into the top 20 for the first time.