fbpx | The Marfan Foundation


June 28, 2021
También habrá oportunidades para que los hispanohablantes se reúnan informalmente en línea durante la conferencia.
June 21, 2021
Tony Award-winning actor, dancer, and choreographer who is best known as Roxie Hart in Chicago on Broadway, was a force in the Marfan syndrome community for more than twenty years.
June 7, 2021
The Foundation’s signature event, will honor two incredible doctors, an outstanding volunteer leader, and the legacy of a Tony Award-winning actor, dancer, and choreographer on June 24, when Heartworks goes virtual.
June 1, 2021

The Marfan Foundation is pleased to announce that registration is now open for our first-ever Virtual Annual Conference, July 8-11, 2021.

April 22, 2021
A variety of offerings are available for everyone in our community - from the safety of your home.
April 12, 2021

Today, Aytu BioPharma announced their intention to conduct a drug therapy trial for Vascular Ehlers-Danlos Syndome.

April 5, 2021
The Marfan Foundation moves into the top 20 for the first time.
March 12, 2021

Even though we cannot meet with our lawmakers in the nation's capital this year, we can still voice our concerns and advocate for issues that matter to the Marfan community.

March 8, 2021
Get ready to reboot your connections with our community this summer!