Annual Report & Financials

The Marfan Foundation is registered as a not-for-profit corporation under the laws of the State of Maryland, and is exempt from United States federal income taxes under section 501(c)(3) of the Internal Revenue Code.

The Foundation takes pride in meeting and exceeding the standards of excellence regarding accountability, transparency and good governance set forth by the National Health Council. The Marfan Foundation has been a member in good standing since 2002. In addition, the Foundation is 4-star Charity Navigator Charity and has earned the Guidestar Platinum Seal of Transparency, the highest awards offered by these organizations.

We are supported by contributions from our members and friends, as well as by individual, corporate, and foundation grants. We actively seek tax deductible contributions for programs that help us advance our mission. Our major sources of funding include the following:

Special Events
We hold many events throughout the year to raise awareness of Marfan syndrome and related conditions and raise critical funds to support our mission. Approximately 37% ($1.9 mm in Fiscal Year 2019) of the Foundation's total annual revenue was raised through special events which included Heartworks Galas, Walks, and other special events.

Foundations
Our Foundation receives support from other organizations or foundations which was approximately 19% ($1 mm in Fiscal Year 2019) of the Foundation's total annual revenue. 

Corporate Support
Corporations support the Foundation's mission through sponsorship of special events, corporate gifts, employee matching programs, workplace programs, grants, in-kind contributions, and more. Approximately 20% ($1.1 mm in Fiscal Year 2019) of the Foundation's total annual revenue was raised through corporate support.  
 

Gifts in the form of real property, endowments, and deferred gifts in the form of wills, bequests, trusts, and insurance benefits are welcome in accordance with our gift acceptance policy.

For a complete look at our financials, please download the following:

2019 Annual Report: Letter from the Foundation Board Chair and President & CEO

2019 Annual Report

FINANCIAL STATEMENTS FOR THE MARFAN FOUNDATION JUNE 30, 2019, WITH COMPARATIVE TOTALS FOR JUNE 30, 2018

2018 IRS FORM 990 FOR FISCAL YEAR 2019

Copies are also available by mail upon request.