Events Around the Country

We hold many events from coast-to-coast throughout the year to raise awareness of Marfan syndrome and related conditions, and to raise critical funds to support our work. From a cocktail party set-up by one of our dedicated volunteers, to our formal Heartworks Gala, to a walk with Walk for Victory, each and every event is important and helps us further our mission.
Additionally, here are several events held each year that provide support and education to the Marfan community. Our annual four-day national family conference and various regional symposia allow patients, their families, and medical experts to come together and connect in ways that literally save lives.
 
An Evening with Heart Scottsdale - Date TBD
An Evening with Heart Boston - Date TBD

Our newest social event is Evening with Heart. Volunteer committees partner with Foundation staff to implement a fun filled upscale cocktail party. 
 
Heartworks St. Louis Gala - March 14, 2020
Hosted by Dr. Alan and Rebecca Braverman, Heartworks St. Louis is a celebration of the progress made in the diagnosis and treatment of Marfan syndrome and genetic aortic conditions. Since its beginning in 2009, Heartworks has raised more than $2 million to improve the lives of those affected. Dr. Braverman, Alumni Endowed Professor in Cardiovascular Diseases and Director of the Marfan Syndrome Clinic at Washington University School of Medicine and Barnes-Jewish Hospital, lost his father to Marfan syndrome and has a brother and nephew who are affected by the condition.
 
Heartworks New York City Gala - May 19, 2020
Join us for the 20th anniversary of The Marfan Foundation’s largest fundraising event. Since its inception in 2000, HeartWorks has raised over $15 million. Karen Murray, former Chairman of the Board of Directors, serves as Corporate Host of this glamorous event.
 
 
Annual Conference - July 9-12, 2020 – Boston, MA
Every year, we hold an Annual Family Conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.
 
Local Community Events
Our local groups hold events of all types - social, educational, awareness, fundraising. Find out what's happening in your area!