Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.


Jun 25 The Marfan Foundation Statement on CeliprololStatement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with Vascular Ehlers-
Jun 10 Dr. Tirone David, Dr. Emile Bacha, and the Kramer Family to be Honored at 2019 Heartworks From the pioneering work and surgical expertise of Dr. David and Dr. Bacha, to the impact on the community that the Kramer family has made as a
Jun 3 One-Year Impact of Marfan Foundaton-Backpack Health Collaboration: Making Life Easier For People With Marfan and Related ConditionsThe partnership between the Foundation and Backpack Health has had a significant impact on our community in the past year. Plus, new developments in


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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.