Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.


Mar 12 Registration is Now Open for The Marfan Foundation’s 35th Annual Conference, Held in Association with Texas Children’s HospitalThe conference, scheduled for July 11-14 in in Houston, will bring together individuals and families from all over the country and all over the world
Mar 5 The Marfan Foundation is an Official Charity Partner of the 2019 TCS New York City Marathon; Slots Now AvailableSlots are available for the most prestigious marathon in the world. If you or someone you know would like to participate (and they do not have Marfan
Feb 20 Heartworks St. Louis Honorees AnnouncedThe Foundation will honor orthopaedic surgeon Dr. Scott Luhmann and ocular researcher Dr. Steven Bassnett at Heartworks St. Louis on March 30.


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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.