Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
|Jun 26||The Marfan Foundation Welcomes Vascular Ehlers-Danlos Community to its 35th Annual Conference, Held in Association with Texas Children’s HospitalFor the first time, a track dedicated to vEDS will be offered, and nearly 75 families with vEDS are already registered.|
|Jun 25||The Marfan Foundation Statement on CeliprololStatement from The Marfan Foundation with respect to FDA rejection of celiprolol for exclusive use in treatment of individuals with vEDS.|
|Jun 10||Dr. Tirone David, Dr. Emile Bacha, and the Kramer Family to be Honored at 2019 Heartworks Our honorees, Dr. David, Dr. Bacha, and the Kramer family truly represent the heart of the Foundation.|
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