Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|May 23||The Marfan Foundation Raises $1.2 Million at HeartWorks 2018 Gala to Support Life-Saving Programs and Services for People with Marfan and Related DisordersThe Marfan Foundation announced today that it raised $1.2 million last night at its 18th HeartWorks gala in New York City. The funds will support the|
|May 11||The Marfan Foundation Makes New Healthcare Management Tool Available Free of Charge to the Marfan Syndrome and Related Disorders CommunityCustomized for our community, the app is secure, easy-to-use, portable, and translatable!|
|Apr 24||The Marfan Foundation & Backpack Health Partner to Offer Unique Tech PlatformPartnership creates a new model for how patient advocacy organizations can better support their members through leveraging real-time data.|
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