Facebook, Twitter, YouTube, ....and the NMF? That’s right, you have found the official home on the web for teens with Marfan syndrome, their siblings, families and friends! Welcome!
This site was created to provide a clearinghouse for all things Marfan. You can read answers to featured medical and social questions, get great fashion tips and ideas, discover the latest in Marfan news and events, and explore ways to get involved with the Marfan community. You can even read about a fellow teen who is doing something Marfantastic.
You can also link to NMFconnect, the NMF's own social network similar to Facebook, but specific to your needs and interests!
This is your space, so we hope you will be active participants. Please let us know if there are sections or resources you would like to see, or if you have a story to submit. Let us know if you are doing an event or program in your community so we can highlight it. Submit questions - you never know, it could be one of the featured questions! To contact us, send an email to firstname.lastname@example.org.
Maya Zimmerman, NMF Board of Directors, Teen Council Chair
Jennifer Buffone, Director of Support Services, Teen Council Staff Liasion
P.S. This summer (2012) long time NMF Teen Program Mentor, Ben Weisman, decided it was time to retire from his volunteer position of Teen Mentor. Ben will be very missed by the teen community. However, Ben will remain very active and involved with the NMF. Ben is currently a member of the NMF's Board of Directors and is the Chair of the Development Committee. W wish Ben all the best of luck in his new endeavors. Take a moment to watch this video the teen community put together to thank Ben for everything he has done for them throughout the years.