quality of life | The Marfan Foundation

quality of life

December 6, 2017

The Marfan Foundation is now offering a new resource featuring physical activity guidelines for people who have Marfan syndrome and related disorders.

The new fact sheet addresses what kinds of activities...

November 8, 2017

The speakers for the Cleveland Symposium on Marfan Syndrome and Related Disorders, hosted by The Marfan Foundation and Cleveland Clinic, have been announced. The symposium,...

November 1, 2017

In a survey conducted by The Marfan Foundation to identify the quality of life issues in the Marfan and related disorders community, more than half of the 1,051 respondents reported that pain (56%) and physical...

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