Every year, we hold an annual conference which provides people living with Marfan syndrome and related disorders, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.
We offer specialized programs and workshops for people of every age, including children, teens, young adults, and older people. In addition, we offer conference attendees free medical assessments, which we make possible in conjunction with the medical institution that co-hosts the meet with us and our dedicated medical advisors, who are the leading doctors on Marfan syndrome and related disorders from across the U.S. This is a unique offering that is truly a benefit for those who do not have access to expert medical care near their home or lack healthcare coverage. And, we offer scholarships for first-time conference attendees.