Recommended Criteria for Development of a Marfan Clinic | The Marfan Foundation

Recommended Criteria for Development of a Marfan Clinic

The diagnosis, evaluation, and management of Marfan syndrome and related disorders require health practitioners from multiple disciplines with specialized knowledge, skills, and experience in heritable disorders of connective tissue. Patients and families are best served in clinics with demonstrated interest and expertise in this field.

The Marfan Foundation believes that many academic medical centers can provide exceptional diagnostic and management services. To develop the expertise and commitment necessary for a clinic specializing in Marfan syndrome, investigators are encouraged to follow the criteria in this document.