School nurses are eligible to receive one copy of Marfan Syndrome: Need-to-Know Information for the School Nurse free of charge.   Click the link at the bottom of the page to request your free copy. 

Additional copies can be purchased for a nominal charge in the NMF Store.

Marfan Syndrome: Need-to-Know Information for the School Nurse is a comprehensive resource for school nurses in CD-Rom format. Includes a wide variety of materials intended to provide the school nurse with practical tools to:

• Identify students in the school setting who may be in need of an evaluation for Marfan syndrome.
• Make a gentle yet urgent referral to appropriate healthcare workers and to the National Marfan Foundation.
• Manage a student with Marfan syndrome in the school setting.
• Educate the student, family and school faculty and staff about the disorder.

Includes sample individualized health plan (IHP) template, referral checklist and letter, fact sheets, emergency care plan, IEP information, and much more.

Funded by a generous grant from the American Legion Child Welfare Foundation.

SCHOOL NURSES May Click Here to Order.

Below is a preview of the slide set that is included as one of many practical tools on the CD-rom resource.