The Marfan Memorial Quilt Project was started in 2003, and consists of individually crafted quilt blocks lovingly created to memorialize family and friends lost to Marfan syndrome and related disorders.

Below are the first two panels completed in 2005.

Click here (you will need Adobe Reader to view the file) to view the guide listing the names of the people memorialized, as well and the name of the person who created each block.

Click here (you will need Adobe Reader to view the file) for information on how to submit your own block.  Blocks will be combined into a panel as twelve (12) new blocks are received.

The NMF expresses sincere appreciation to members Wendy Weiss and Ann Jarosz for their invaluable assistance in piecing the blocks and completing the panels.

For more information, contact Jonathan Martin, NMF Director of Education and Public Awareness at jmartin@marfan.org