[CLICK HERE TO DOWNLOAD THE TOOLKIT]
Thank you for your interest in #MarfanAwarenessMonth!
This year, we are providing you with easy‐to‐use tools to increase awareness of Marfan syndrome and raise money for the National Marfan Foundation during February, which is National Marfan Awareness Month. Our goal is help you reach out to your online and IRL (in-real‐life) friends through email and social media.
National Marfan Awareness Month was established in 1991 as the anchor for a coordinated national awareness campaign. Throughout National Marfan Awareness Month, our community is encouraged to reach out to family, friends and co‐workers to make more people aware of Marfan syndrome and related disorders and to ask for support of the Foundation’s mission of education, family support and research.
Through this toolkit, we want to make it easier for you to carry out this call‐to‐action. The
success of #MarfanAwarenessMonth depends on the collective efforts of our community members. You are the most important part of the formula for success in February 2013’s #MarfanAwarenessMonth!
In this toolkit, you will find:
- #MarfanAwarenessMonth key messages
- Marfan syndrome FAQ
- Social media guide with sample tweets and Facebook status updates
- Sample FirstGiving page, with sample email to share the page with your relatives, friends and co‐workers
- “Marf‐Facts” for every day of the month
- National Marfan Foundation quotes that you can use throughout the month
- Useful links
Your support of #MarfanAwarenessMonth will help the National Marfan Foundation reach
more individuals with life‐saving information and raise additional money to help fund groundbreaking research, up‐to‐date education, and critical support services to individuals and families with Marfan syndrome and related disorders.
We hope these materials will help you give a greater voice to #MarfanAwarenessMonth than ever before! Together, we can make a difference. We look forward to working with you!
[CLICK HERE TO DOWNLOAD THE TOOLKIT]
|
