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Meet our Network Group Leaders
Contact Information
Description of the Group
Meeting Location
Upcoming Meetings and Events
Announcements

Meet our Network Group Leaders

Rebecca Stroda
I am a wife and mother of three children.  One of our daughters has Marfan syndrome.  I first heard of Marfan syndrome back in 2004.  Our daughter is the first in the family to have Marfan syndrome.  It has been a journey the last few years with many specialty appointments and back surgery a year ago.  My husband and I are extremely thankful to the NMF for their support and the resources they so generously share.  My hope is to continue to connect with others affected or who support those affected and spread awareness and education.  I have found the Marfan community to be supportive and educational, and some of the most amazing individuals who shine in not always the easiest of times.

Contact Information
Rebecca Stroda
(503) 397-0462
kk4ra@hotmail.com

Description of the Group
The NMF Portland Network Group is a local meeting of the National Marfan Foundation that serves members in Washington and Oregon by providing connections with those who are affected or who have an interest in Marfan syndrome and related disorders.  Our mission is to educate and support affected individuals and their family members, as well as to provide ways to reach out and improve awareness in our community.  We also do fundraising to support NMF programs that in turn serve our members.

Meeting Location
We meet every other month within Portland and the surrounding area.

Upcoming Meetings and Events
Meeting
February 5, 2011

Event
Crab Feed Fundraiser
February 19, 2011
Tickets: $20
More information to come

Announcements
Coming soon!