|
"Connective Issues" Supplement -- Winter 2010
|
PEOPLE AND EVENTS RENT Around the Country Omaha, NE – Sherry and Roger Heldt conducted Marfan syndrome awareness through hand-outs and a “curtain appeal” at the RENT performances at SNAP Productions Shelterbelt Theatre in Omaha, NED, in December. The theater manager advised Sherry and Roger that their initiative has “set the tone for the show.” Sherry and Roger became involved because their nephew, Tim, was an actor in the show (he played Mark Cohen). Sherry was gratified by the results of their efforts, including several inquiries about Marfan syndrome and one family who has Marfan syhndrome and wants to join the local Network Group. Sherry and Roger will continue their RENT awareness and fundraising efforts in February, when a local high school is performing the show. 
Sherry and Roger Heldt (in NMF logo t-shirts) with the cast of RENT at their local theater.
RENT in High School Wood-Ridge High School in Wood-Ridge, NJ, performed “RENT-School Edition” for their Spring musical in 2009. They added a fundraising element, as a result of NMF materials included with the play materials sent to the school and raised $100 for the Foundation. School Nurse Education in Ohio NMF members Mary Ann Nowacki and Elizabeth (Liz) Underwood gave a presentation about Marfan syndrome to the North West Ohio School Nurses Association (NWOSNA) on October 28, 2009. The distributed the NMF’s CD rom for school nurses to the 20 in attendance. According to Mary Ann, “All those in attendance gave us positive feedback and were very grateful for the information. Many asked if they could take more than one of the CD's for some of the other nurses.”  Liz Underwood addresses the school nurses as Mary Ann Nowacki looks on. Birthday Rock ‘N Bowl Fundraiser Bard Giacone, of Metairie, LA, whose sister Laurel has Marfan syndrome, threw a Rock ‘N Bowl party on December 30 to celebrate his birthday. The invitation said,” Instead of presents, I’d prefer a donation to the National Marfan Foundation, a cause that’s very close to my heart. I’ll have a box if you choose to bring a donation. To learn more about Marfan syndrome please visit marfan.org.” Thank you to Brad for thinking of others on his special day.
|
