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New Hampshire / Vermont Network Group
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Meet Our Network Group Leader
Rene Jones started the NH/VT Network Group in fall 2008, after moving to Merrimack, NH from Andover, Maine. She is the mother of three children, one of which is affected by Marfan syndrome. Her son Drew has built awareness by sharing his background with peers at school, and her daughter Lauren Barletta serves on the board of the Massachusetts Chapter.
Contact Information
Rene Jones
23 Stevens Avenue
Merrimack NH 03054
(603) 769-1263
email: coordinator@nhvtmarfan.org
Description of The Group
The NH/VT Marfan Network Group is a local meeting of the National Marfan Foundation that serves members in New Hampshire and Vermont by providing connections with peers, education on the Marfan syndrome and related disorders, support for affected individuals and their family members, as well as ways to reach out and improve awareness in the community. We also do fundraising to support NMF programs that in turn serve our members. Our greatest concentration of members is in southern NH, but we are committed to finding regular ways to connect with members throughout the two states, including rotating meeting locations and fostering online communications.
Meeting Locations
New Hampshire and Vermont Network Group meetings will be held 2:00 - 4:00 pm every other month in the Fuller Board Room at Dartmouth-Hitchcock Medical Center in Lebanon, NH, close to the Vermont border. Complete directions are available on the DHMC website.
Dates of Future Meetings and Event
Mar 20, 2010 2-4pm DHMC Fuller Board Rm, Lebanon, NH (Details)
May 08, 2010 8-3 New England Health Symposium DHMC Aud A-F (Details)
Jul 17, 2010 2-4pm DHMC Fuller Board Rm, Lebanon, NH (Details)
Sep 18, 2010 2-4pm DHMC Fuller Board Rm, Lebanon, NH (Details)
Nov 20, 2010 2-4pm DHMC Fuller Board Rm, Lebanon, NH (Details)
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