Meet our Network Group Leader
Contact Information
Description of the Group It is my hope to develop a fun group that actively offers education and support. So far the group consists of several famalies that have affected children and parents. We are excited to network with others in the Northwest affected by Marfan syndrome and other connective tissue disorders.
Meeting Location
Our meetings will take place at:
Pietros Pizza
107 2nd St
Hood River, OR
*See Map Below
Dates of Future Meetings and Events
Current Information
We had a great Family get togeather on Aug. 10th in Hood River, Oregon. The adults got to socialize while a great group of kids played video games and had fun togeather.
